Welcome!!!

[Tina]

Hi! My name is Tina. I started this board as a way to connect families who are affected by Beckwith-Wiedemann Syndrome.

I, myself, have BWS. I am also the mother of 2 year old fraternal twins who both have BWS and I am expecting a little girl in May who will, most likely, also have BWS. So, I think I have a little experience with this particular syndrome.

I wish you all well and please, if you have any forum suggestions, let me know!!

[awnathans]

Hi, Tina. I am Debra Nathans's mother-in-law, and Lily Nathans grandmother, and she has told me all about your friendship. I think it is wonderful that you have started this message board for BWS families. I have quite a few questions I would like to ask in future messages, but for now, I just wanted to introduce myself and say thank you for doing this.

Amy Nathans

[Tina]

Hi, Amy! I am glad you are joining us.

[mishmashegas]

Hi, Tina! *Waves.*

[Stephanie]

Hi, I am a mother of 2 beautiful daughters. My youngest was diagnosed with BWS about a month ago.

[ataya and kaydon]

hi my name is ataya im from australia, found this site on facebook.
i have a 6 mth old son who has bws omphalocele was operated on day of birth and have an appointment next week to find out if and when tongue reduction surgery is needed.