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Post by Tina on Mar 29, 2009 21:04:49 GMT -5
It looks like we'll be getting the twins their surgery this summer! I went through the surgery as an adult, but I have no idea what to be prepared for with the boys. For anyone who has gone through this with a toddler, what did you find most helpful for their recovery? And what about travel? We are going to have to drive 10 hours to get to the hospital for this and I am a little worried about the return trip. Help!  |
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Post by mishmashegas on Mar 29, 2009 22:31:07 GMT -5
Are you going to St. Louis?
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Post by Tina on Mar 29, 2009 23:33:32 GMT -5
We wanted to, but the cost is prohibitive and it looks like we will be doing it at the University of Michigan. I am not thrilled, but it's either that or it won't get done. I am really nervous about this.  |
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Post by mishmashegas on Mar 30, 2009 11:34:35 GMT -5
Do they drink from a cup? Are you still nursing? The worst part for me was feeding after because we kind of had to force-feed her once the feeding tube came out. We used a Medela Special Needs Feeder nipple, which we squeezed. That was easier on the hands than the squeeze bottle that they gave us at the hospital. Oh, Tina, she used to scream! It would break my heart. At least for the ride back you won't be in public... we took the plane back and we had to feed her during the flight and everyone on the flight thought she was being murdered. We ended up explaining the situation to the flight attendents, who were able to keep the rest of the passengers from lynching us. When the feeding was over, Aaron walked up and down the aisles answering questions. I am so not making this up.
I feel awkward offering YOU advice since you've been through it and were so helpful to me! I think that based on what I know about Peter and Robert, the surgery will not slow them down for long. We had to be religious about keeping up with her Tylenol, and we used suppositories to make it easier to give. And once she was able to eat without screaming, it got much easier.
You know, ask me anything and I will tell you what you want to know about going through it with a toddler.
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Post by Tina on Mar 30, 2009 17:25:38 GMT -5
They drink from a cup and they *think* they are still nursing. (I really want them to give it up so there are fewer jealousy issues with the new baby but, that ship may have already sailed...) I have a feeling they will forcefully wean from the surgery but, that sounds kind of traumatic to me.  I remember how much it HURT to just drink. (And those jerks told me I needed to drink an absurd amount of water in one morning to be released from the hospital and I did...God, the pain!) I can only imagine poor Lily on the plane. (Sort of reminds me of when I flew to Germany. There was a VERY sick child on the plane. It was 12 hours of constant shrieking. o m g.) I hope they won't be slowed down for too long, but who knows. I will remember the suppositories. That does sound a lot less painful to give after surgery! |
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Post by Jarrod on Apr 13, 2009 13:31:56 GMT -5
my son also has about 1 year until his surgery. Were your children very large at about 6 months? My son is 21 lbs after just five months. My other son is 2 1/2 years old (no BWS) and is only 30 lbs....any hope of averaging out?
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